Wednesday, April 27, 2011

Oh the LIFE!

Don't worry mom kept her entertained at the hospital!

Everyday she had many freinds and family visit, she loved it.

The day we were leaving, we went for a walk, came back and her bunny was takin ovah her bed!

Many therapys tried to help her spirits :) But, everday the dogs would come in, they would look at her, and sit and go to sleep.. Never failed. Maybe they senced she was hurting and wanted to leave her alone??

I refuse to show the photos of her in really bad shape, but this last friday where she had a hard time breathing, the home health nurse sent us to the ER cuz she thought possibly she has a blood clot in her lungs. Glad it wasn't, but she did get Broncitis. :(

Life is funny, you can be flying high, then the next minute a wind gush can take you crashing to the ground. I refuse to crash, that is not my style, I am more likely to do flips on my way down, and gracefully, land.

Still having issues with my poor Keilani, she was admitted to Primary Children's Medical Center a couple of weeks ago, and stayed almost 2 weeks in that lovely place.

I took her to the doc, she couldn't walk and talk, she was very pale, and I just didn't feel right. The Doc immediately sent us to PCMC on the fact her blood pressure, and heart rate were so dang low. And there we stayed.

I haven't posted and I am behind, but during this Maka's dad passed away, I will post later bout that.

We got home and PCMC had sent us to go see a TMJ Specialist. I made the opp ointment and everyday my Nani cried in pain I comforted her by saying that it would only be a little while longer that she would have to endure the pain. You see her very small break has healed, but she continues to have horrible pain, where she can't open her mouth very much at all.

Can you imagine living life all the time with your pain scale a 7?

She is one tough cookie.

Yesterday was the day for our much anticipated appt. We woke up with great spirits and thought today is the day we see the light at the end of our tunnel.

Then I got the call.

"Mam, just making sure you will be at your appt. today, and that you will bring the payment today".

Me- I will bring our copay yes.

Lady- Uh, your insurance doesn't cover this, so you need to bring 350.00 for the consult.

Me- Well, we could pay the consult, but couldn't pay for the treatment, so never mind we will find someone else. bye. click..

I was so devastated. blah

I grabbed out insurance card, called them. The lady on the phone said, "yes you are covered but you need to find someone were contracted with. I will find someone for you."

I was going through my head.. "are you kidden me?, if we need to schedule another appointment, it will be another 2 weeks before she is even seen." Just then the insurance lady said I will contact them, I said OK, but was really trying not to be too down, our family and so many people were praying for our Keilani, I had to keep the faith somehow.

They contacted a maxillfacial surgeon who also specializes in TMJ injury's. The receptionist said.. "oh I just got off the phone with a client who canceled.. Would you want there spot today?"

My eyes teared up with joy, and said yes. I got off the phone, and said a prayer of thanks, and apologized for my lack of faith for the moment.

Before the Maxillfacial Surgeon walked in the room, we heard him pick up the chart, look over it and started to open the door, but he stopped.. I could tell he was just standing there doing nothing, I was confused. lol

But finally he walked in and said... Keilani I am so excited to finally meet you. Do you know why? Keilani said.."Cuz your gonna take my pain away?".. He laughed and said, "Yes I AM".

He then went on to say, he was excited to finally meet her because you see he had been worried about a someone who he needed to help, he didn't know who it was, and this thought couldn't get out of his head for over a month now.

My jaw dropped, as he kept talking my mind was racing putting all the pieces together for the last month. I KNEW with out a shadow of a doubt, the LORD has his hands in this, and wasn't going to give up, so we better not either.

He stated that her bite was way off, we knew that, and he said her face was still swollen. Yup.

But after the consult and looking at the MRI from PCMC.. He was shocked they had missed so many important signs and showings from the MRI.

But if they found something, this wonderful man who I know for a fact is meant to help Keilani for a reason, wouldn't be.

If they found something, we wouldn't learn from this trial, we wouldn't grow, then all this pain and suffering would be for nothing.

HE defiantly has his hands in this plan, and I am not one to step in his way.

Keilani is an amazing girl.. For over a month now this girl, who loves life, loves food, loves soccer. Has given it up to grow, to help her parents and all those in our and her lives grow spiritually.

She is still enduring the pain, we have very many sleepless nights, I see it on her face, I see it on mine. But that is temporal, and what we are working for is Eternal, so we will endure the pain, and keep the faith.

There was a time in the hospital we thought we were losing her. We saw her slipping away, I knew she wouldn't leave us, but it put life into prospective. Something so little can turn into something so big..

In a heart beat.

I am so thankful for all who have been praying for us, and continue to pray and help take care of me and my LITTLE family. We have had members, inactive, and non members reach out to us, help us in so many ways, that I just tear up every time I think about it all.

I love each and everyone of you, more than you will ever know. I love my church, and thankful to have the knowledge of Eternal Life and that if I keep the faith and live to the best I can. I will never be left alone.

So the plan....

If the insurance will hurry up, we will have surgery on Friday. They will go through the inside of her mouth..


They will repair the joint, do a steroid injection, and a numbing block.. weird huh.

You see we got wonderful news that there is a difference between a injury to the joint itself, and the TMJ disorder. And thankfully after the joint heals, she will too..

He said by the time the numbing block was complete, so would she.

In fact 95% success rate..

That makes mama happy. We know she will have slight problems but...

That slight is nothing compared to what this poor girl has endured..

Phew I know I am leaving out a lot of information.. But

dude, you seen the size of this post?

Peace out!

19 coments:

shauna said...

OMGosh! I had no idea you were going thru such a tremendous time. The Lord is blessing you and you know where from where it comes. Some would be bitter. Not you. I will add my prayer to all the others. God bless.

Julie said...

So SO happy to read all of this! YAY for answers and wonderfully in tune people, and yay for a woman like you, Devri, that can see all the good in it and can recognize God's loving hand in all of it and share it with us to increase our faith. THANK YOU! Still praying for you all.

Stacie said...

man oh man! so many blessings,, some big some little, many prayers that the friday surgery can happen and help your daughter regain back her strength and energy!

Jillene said...

I will say it again, A-MAZ-ING!! Heavelny Father had heard and answered many prayers for this beautiful girl. I am sitting here bawling like a baby. These are tears of joy of course. I am so happy to hear this news and my kids will be too. Thank you for inspiring me to be a better person, and to be more faithful. Thank you for sharing your beautiful testimony--it has strengthened mine. Mucho Ofa's to you and your family!!

Elizabeth said...

I totally just bawled through that whole post. I'm so happy that you have found someone to help that baby girl! I love to hear about miracles and, for sure, you guys have had one happen! Thank you for sharing! It helps to strengthen my faith as well!!

hoLLy said...

SO happy that you finally found someone that will help your sweet girl!! prayers that surgery goes PERFECT!!! so happy for you right now:) there is a light at the end of the tunnel-woohoo!

Alice Wills Gold said...

God is good. That's all I got.

Glad to see you blogging. Love the new look. How the freak did you get so many followers? BTW I just followed you. Can't believe I never did it before, but I still don't get the point.

Love you Devri. Can't wait to meet you. Let's get together this summer when things slow down.

susette said...

This post brought tears to my eyes. Not only because I feel so sad for what your daughter is going through but because I understand that overwhelming love and support that comes from so many unexpected friends, neighbors and strangers. It brings emotions to the surface all too easily.

I am thinking about you and your sweet little (big) family and wishing the very best through all your recent challenges. You are strong people!

tammy said...

So thankful that the Lord knows each of us and our needs. The story about the doctor gave me chills. Wow. So glad she will finally be getting the help that she needs. I know how life can change in an instant. I've witnessed it myself lately. So thankful for a loving Heavenly Father who watches over all.


Motherboard said...

I started to cry when I read the part about the Doctor. Your family has been on my mind a lot. I hope you get some peaceful resolution from this.

much love!

Diaper Diva said...

You and your family are a testament to the blessing of great faith and a loving Heavenly Father. I am keeping you in my prayers.(((hugs)))

Alicia Rodewald said...

Okay, the doctor got me crying. What a wonderful man! What an awesome God! I'll be praying the surgery is a success and she's quickly on the road to recovery.

Garden of Egan said...

Been thinking about you and praying for YOU and your family.

Good to read how she's doing! Prayers for continued recovery.

Laura Zweifel said...

You and your family are a true inspiration of faithful to the end. My life is better because of your steadfastness. Love ya and will keep praying
for you guys.

TisforTonya said...

what a happy turn of events to find the doctor you were looking for - and to know that he was also looking for you!

pain free sounds like such a blessing for her, we hope it comes quickly!!!

Renee said...

Man alive! I was freaking out because of a wisdom tooth, your girl is one tough cookie!!! What an inspirational story.

Jessica said...

You are so very blessed! I pray the insurance will hurry up!

Adrian's Crazy Life said...

I have been watching this whole thing play out on FB and feeling so bad for your poor brave little girl to have to go through all this pain. It just breaks my heart to see all she has been through. I don't know what I would have done if she had been my child in such pain. I can't even take the cat to the vet to get a shot, I'm such a wuss!

I think it is so wonderful to see that she has found a doctor and a treatment plan who can help her to not be in pain and start to get better. I will be thinking about you tomorrow.

Sue said...

Wow!!! You have really been through it all my friend.

The Lord is definitely answering your prayers.

Continued blessings for your sweet daughter.

Keep the faith momma, cause your amazing.